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Tuesday, July 15, 2014

STK4 gene test is back

Fi's mommy's blog Tuesday, June 10, 2014

Each of us has 2 copies of every gene. One comes from mom, the other comes from dad. Fiona has a mutation on one copy, but not on the other. What does that mean? I don't know. Her mutation is different from the others they've seen. We go back to Cincinnati in the middle of July. I'm going to see if we can talk to the doctor before then.

Fiona is doing really well. She's healthy, her thrush is gone. She finished Diflucan last week, so I'm checking her mouth every day. She is potty training, and I'm thankful for our carpet cleaner! :)

help fund Fiona's transplant:  hhttp://www.gofundme.com/shesafightercom
read Karen's blog - keep up with treatments & test results. http://fionafighter.blogspot.com/

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